Happy New Year

Oh My God!!!!!! Can you believe it is another year gone by already. Here it is half way into January of 2011 and I haven’t updated here so long. So far 2011 is starting out pretty crappy over here in the McNally household. We have had nothing but problems since Christmas eve when Pat’s power wheelchair broke. We are still waiting for the part to come in it was supposed to have been shipped on 12/30/10 and here is is 1/16/11 and still no part!!!!!! It is so frustrating for Pat since he is already has to rely on me for so much but now he can’t move at all in his manual chair so if he needs something or wants to do something he has to call me to help him. Thankfully it happened now that the weather sucks because if it were summer I think he would be even more depressed. Besides his chair being broke Pat’s spasms have been horrible. You just look at him and he starts to tremor so we have been back and forth to Boston to try and figure out what is going on. We still have no answers for that yet. His doctor thinks the catheter that goes from his balcofen pump to his spine may have shifted and we are going into Brigham and Womens hospital for a follow up to see if that is the problem but that wont happen for the next couple weeks. If that is the only problem he’ll have to have outpatient surgery to adjust that so things are up in the air for a little while.
Now that the holidays are past we are back to our diets. Pat has lost 57 lbs and I have 15 lbs more to loose. Pat’s goal is to get down to about 220 lbs and then work with the doctors to find the appropriate weight to maintain. He is a big guy so they don’t want him to skinny since that would give us other things to worry about.
On the bright side of things Pat has been getting some strange and new sensations through out his body. His triceps have started to work. This is great news since this is what he needs to strengthen in order to push a power assist wheelchair. They burn out quick but it has been a consistent thing now for about 4 months. He has also gotten some quad muscle firing in his legs when he is doing squats on the total gym at Journey Forward. So as always keep him in your prayers that some day soon he will be up and about.
As always we love you all and thank you for your thoughts and prayers. For your viewing please our niece Lexi at 4 months old she has gotten so big.